Evangeline

Pressing On

Things are really hard for Evangeline right now.
She is not bouncing back from this surgery well at all. She is still flat on her back and in literal agony when they try to move her.
Her leg has not improved since the earliest movements of a couple of days ago. Her tongue […] Read more…

We Praise Him

As I have talked to the Neurosurgeon more and more, I have begun to understand more clearly about Evangeline’s spine and what happened in the operating room.
Children with Diastomatemyelia have a split spinal cord separated by a boney spur that penetrates the cord.
Usually, children with this situation have two healthy cords.
Evangeline does […] Read more…

Tuesday Night Update

I just wanted to take a few minutes to update everyone who has been praying for Evangeline.
She is doing well, and just tonight has been allowed to start a little food.
She is still lying flat on her back and will need to be lying flat until tomorrow late afternoon.

She can move her […] Read more…

She Moved!!!

I don’t know any more.
We’re still waiting for the doctors.
BUT, she woke up and stretched, and her knee came off the bed six inches!!!
Praise God!!!!
I’ll keep you posted!!!!!
Blessings!!!!
Diane
 Read more…

Tuesday Morning

It is 9:30am here in ICU.
I’m waiting for the doctor’s to make their rounds.
Evangeline had a peaceful night.
Here is her best attempt at a smile.

Her pain isn’t too bad. She has to stay flat on her back for at least 48 hours which would be late afternoon tomorrow.
She […] Read more…

Good Night All

Evangeline has been awake sporadically since around 6pm. She does still have some sensation in her right leg which is a good sign, but she has no function in it.
It just lies lifeless on the bed. It is just heartbreaking to see.
BUT it is still early. The next few days will present […] Read more…

Things Aren’t Good

Things did not go well. She lost the use of her right leg. Surgeon does not know if feeling and function will return. We are praying it will.
He had to stop the surgery when he lost all signal in her right leg.
I’m with her in ICU. She is not awake and still […] Read more…

Surgery Tomorrow

We have been getting all ready to leave bright and early Monday morning for Evangeline’s surgery. She is first on the list.
She had to have a hot soapy bath, be all washed down with antibacterial wipes and be put to bed in freshly washed pajamas and linens.

We braided her hair so it […] Read more…

How They Love Us

They bless us so with their love.

They are so raw, so vulnerable, and yet so absolutely thrilled to be in our family.

And that just makes my heart soar.
Tonight Evangeline told us she never wanted to grow up so she could stay here with Mommy and Daddy forever.
You can stay as […] Read more…

Gearing Up For Surgery

Yesterday I took Evangeline up to Children’s for her pre-op appointment.
At this point she is first on the schedule for Monday. Dr. Sutton will remove the bone in her spine, and then she’ll go directly to the intensive care unit.
The doctor really isn’t sure how long it will take him to get […] Read more…

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