I sit here amidst the rhythm of the inflating and deflating of the circulation bands that keep Evangeline’s tiny legs and feet oxygenated as she lays still, drugged to a stupor to be relieved of the pain she bears. The hum of the vacuum that drains her wound provides white noise, and even peace, […] Read more…
A Good Day!
I’m sorry I am just now getting to let you know how everything’s going. It’s been a busy day with doctors, and support staff. And Mark is here so I have been enjoying him too.
Evangeline had a good night. She has been mostly sleeping due to the morphine and the Valium, without which, she […] Read more…
Worth a post all of its own!
It works!
Thank You, God.
Diane
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In the PICU
Evangeline is calm. The morphine has settled her pain, she is resting.
We have a lovely single room with a great view.
And she can move her legs.
God is good.
My broken iPad is not. 🙁
Thank you for your prayers.
Blessings!
Out of surgery.
Just saw dr Campbell. She did not lose function of her legs! Her spine looks much straighter. I can have copies of x ray’s tomorrow. We will not know how she can manage the stiffness of the spine until she can stand. He did not go all the way down to her hip bones because […] Read more…
They’re closing her up!
I really don’t know anything yet because I haven’t talked to the doctor, but the nurse just came out and said they are closing her up. It’ll be another hour or so before I see the dr and probably 3 before I can see Evangeline in the intensive care unit.
But I don’t think she lost […] Read more…
Sweet Livi
Don’t forget to pray for our sweet Livi. Her fever is so high. 🙁
Thank you!
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Second Update on Evangeline
The nurse just came out and said one rod is in, and now they’ll put the next one in. Then, they start working to see how much correction they can get, and then the bone grafts.
Thanks for your prayers!
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First update on Evangeline.
The nurse just came out and said all the screws are placed. Now they will begin to slowly put the bars in and do the bone grafts. So far so good.
The nurse has come out every hour, but until now there wasn’t much happening. Now is the crucial time as they try to straighten […] Read more…
Spinal Fusion
Evangeline is in surgery today for her spine. It has been falling quickly as she has grown since coming home, and has fallen to 117*. She has a rare condition called diastomatemyelia, which is a deformity where the spinal column splits and is pierced by a boney spur.
Many of you know that the […] Read more…
