Musings of a mother of many
Yesterday was the kid’s last day of school. It feels like we go for forever here in NJ. We had so many snow days, so that made it even longer this year. And we were all so very ready for it to be over.
I haven’t written much on my blog about our decision […] Read more…
I hardly even remembered it was Father’s Day with my thoughts being so consumed with caring for Evangeline. The kids remembered though.
I woke up Sunday morning and really didn’t think Evangeline would be able to go to church. And I also didn’t think I could get her ready in time. […] Read more…
We are SO VERY HAPPY to be home.
I tried to get pictures of all the kids, but Victoria didn’t want me to take her picture and Evan was working.
Thank you all so much for your prayers as we all continue to heal.
Blessings!
Evangeline has made fantastic improvement, and we are going home tomorrow morning!
She walked quite a long way out of her room, and even went up and down four steps today. You can see the pink walls that are her bedroom.
She’s still in so much pain when she moves, but she is really working […] Read more…
I went for a walk today in search of a tiny grassy knoll and a little pond in the center of the University of Penn’s campus called the Bio Pond.
Admittedly, I was also in search of peace and a separateness from all things medical, from beepers and monitors, and nurses, and even from Evangeline’s […] Read more…
Evangeline is really improving. She is just doing amazingly well. She walked all the way around the room and stood today at the sink and brushed her teeth with only a little help.
She’s wearing a tight thick terry tee that goes under her brace, but she is so tiny it looks like a […] Read more…
Evangeline really made improvement yesterday.
They got her out of bed, and she stood and took a few tiny steps to turn toward the chair.
They left her sitting for half an hour, and then did it all over again in the afternoon. She was not happy about it, but she did it! […] Read more…
Evangeline is not tolerating the pain meds well. She is terribly nauseas, and has eaten nothing but a few bites of strawberries. She vomits her pain meds, and is in agony.
At this point, she is dehydrated and not metabolizing the meds. Yesterday she sat up in the brace for maybe five minutes while they […] Read more…
The team rounded this morning and said that Evangeline is in a stalling pattern. In other words, she should be sitting, taking a couple steps, eating, and drinking on her own. Unfortunately she’s doing none of that.
She is just in agony and screams from pain if we just try to move her slightly […] Read more…
