We have spent the last two days at CHOP with Evangeline.
We saw infectious disease yesterday for her bone infection. Her blood work looked wonderful.
Her foot is healing, and she will go back on Wednesday to have her stitches taken out. The dr. usually uses stitches that dissolve, but since he is dealing with a foot and leg that has little blood flow and no nerve function, he felt the dissolvable kind would only get infected.
It is my understanding that he will do surgery in about a month to properly align both feet. She will be in casts for a couple of months, and then she will be fitted for braces which she will wear for the rest of her life. Then, she’ll be up walking again.
The only thing that may interrupt this plan is her spine. The dr. believes she not only has Spina Bifida, but also diastomatemyelia, which is a condition where the spinal cord splits, is separated by a bony mass, and then reunites below the mass.
The problem with this is that when she grows, the cord can get caught at the bony mass. It could prevent her from growing, and also cause her to lose function.
We will see the Neurosurgeon on Wednesday to discuss her spine and need for surgery.
In the meantime, Evangeline has a new cause. There are four children she has asked me to find a family for. They are all her friends, and they range from age 10 to 13. I have asked an advocate to look for their files, and they do not exist.
I don’t know if there is any way to request the orphanage provide files for these children. It is my understanding that not very many children are adopted each year from Evangeline’s orphanage. It is a very poor one, and it costs money to prepare files.
My heart is just breaking for the children who are left behind.
Praying for wisdom,
and a miracle.