I thought we were done with trips to CHOP for a few weeks, but on Wednesday, I received a call from Children’s Hospital requesting that I make an appointment with neurosurgery.
I called neurosurgery, and was given an appointment for today.
It turns out that Evangeline will be having surgery in two weeks to remove the bone spur that pierces her spinal cord.
Then she will have a second surgery, probably in the summer, when a veptr will be used to stabilize her spine.
The bone spur needs to be removed because a big growth spurt or pressure placed on the cord from the veptr surgery could cause the spur to sever her spinal cord resulting in paralysis. Even though there are risks with the surgery, it just isn’t safe to leave the spur.
The veptr surgery is necessary because she has a 50* curve, and her spine has already begun to fall. It will continue to fall over time and further compromise her nerves and vital organs, specifically her lungs and heart.
We came home and drew a few pictures and explained the plan to Evangeline. She is taking it all very well, but she did say, “Mommy, I think so, I have a lot of surgeries. It hurts. Why?”
We really would appreciate your prayers for Evangeline and Eliza, and for our family as we move into this next phase of major surgery.
Evangeline has had a lot to adjust to. Her feet are nice and straight in her braces, but she cannot walk at all without them. She cannot even stand in the shower. The surgery had to be done, but she has lost a lot, and it’s tough for her to accept it and tough for us to watch.
Eliza cried for an hour when she heard I would have to stay at the hospital for a few nights. She does not want me to leave her. She has bonded so intensely with me and never wants me to leave her side.
Our biological children seem to be doing well with it all, but the girls do demand a lot of attention from me. I try to balance everything, but there is only so much I can do because the girls do constantly vie for my attention.
I know they finally have a mommy after years of waiting, and I completely understand that this is an expected stage.
They are precious and sweet and so very loved.
We covet your prayers, and are ever so thankful for God’s presence here with us as we walk this healing path with our girls.